Finding that pinnacle of forgiveness in your heart is easily said then done. As parents to Tegumailagi we often find ourselves having to think twice about attending events or overhearing comments being said or statements uttered out in a very unpleasant and unloving manner that tend to pull on our heart strings. We tend to think if only you live with us , walk our walk you would realise, this is our normal this is our right. You will realise the reason why things are the way they are at home in the house. Autism was rejected and not understood in our house in the beginning of Tegumailagi’s journey. The battle is won when we understood the dynamics of what it is we are up against as a family. The mental resilience to walk away from fights that does not enhance our progression with anything in life. I’ve often wondered for a long time now as to why don’t Tegu utter a word when he can hear what people say about him. Today it dawned on me, he try’s his hardest to avoid people who don’t understand him. Tegu is loneliest when his around people who don’t understand him I have gathered that for the 10years of Tegumailagi’s life. To Tegu loneliness isn’t the presence or absence of others. For Tegumailagi loneliness is really knowing that no one can relate or understand him for being a very unique young man that he is. That is the one fact that he has accepted for a very long time now. The willingness smile and to forgive those who don’t know or understand his battles at the same time finding hope to continue to show love to those that fault him. Now that is growth with mental resilience. Thank you Tegumailagi for your actions that speak louder than your words. Stay Blessed always my Tegu Love you always Nau. X

was the answer I got. I respectfully obliged and wore our Kalavata myself. Tegumailagi’s outfit of choice was remarkable ( Pink long Sleeve shirt and khaki chinos) I really was impressed with his choice. Bags packed, in the bag were items like chargers in case we run out of battery life for our gadgets, jigsaw puzzels, and our favourite red blanket, welly boots because Tegu insisted “its Raining Nau”, so into the bag went the wellies , a white bowl for his crisps and his juice glass. These were just some of the things we took, but Nau’s bag of goodies seemed like it was packed for a weekend away.
And if we could, we would fit the kitchen sink into the bag aswell. We got to the Hall and it took us almost 30 mins to persuade Tegumailagi into the hall this was after we mentioned “Tegu you can do your jigsaw in that room” (this was a fairly big storage room) this made Tegu smiled and he gladly walked into the storage room with his red blanket and myself behind him with our bag of goodies. It was now lunch time and even though his Ta and I know what he usually eats for lunch (Waffels,Toast,Crisps) we always make sure to ask him if he wants something else for a change just to keep him included in everything we do. Even if there is no answer from Tegu the fact that he has been considered makes him smile. He kindly requested for (crisps in a bowl Nau please). He munched smiling as if that was the first time he had eaten those McCoy’s Cheese and Onion flavoured crisps. We lasted till it was Hall closing time by this time Tegu was ready for Bed and so was Nau. I came back home and reflected upon the day, like many things that happened while getting Tegumailagi ready he could have chosen not to go but he made a choice. He picked his own outfit and made an effort to get to the Hall. Like many things in life we make choices, decisions that does not make sense to others, but to you as a person it does. Allow yourself to make mistakes how else are you to learn. Keep walking your walk, it will be someone else’s preferential choice to make an effort and walk with you. Life is certainly not a dress rehearsal so keep being you and make an effort to get there. Thank you Tegumailagi for reminding Nau to include and always make an effort to get there 😘😘.
We can’t give up. I wanted reassurance there and then, just that dose of optimism that all will be alright. As all the conversation was in “hand gestures”, if Tegu wanted water, he would point at the tap for water, if he needed to go out side he would put on his boots, he would also know when it was time for evening devotion. ( he would walk up to the Tv and switch it off even if his Ta was watching the rugby). Tegu is now saying one to five words everyday. Like many things we tend to think of the what ifs and the i should have, be rest assured that , memories will be made,(either good or bad) what will be will be, keep praying for prayers are answered in God’s timings and not yours. It would not matter how big your trial is, it will be conquered. Your hardships are your blessing in disguise. Don’t ever think that it’s IMPOSSIBLE” it spells out Im Possible. X
I mentioned his dietary requirement (limited to toast evenly covered in butter and honey with cut out crusts or mccoy cheese and onion crisps). I reassured Lou and Patch at the Welfare Dept to not worry, I will bring Tegu’s food to save the inconvenience of having to do one specific snack for just one person. We arrived greeted by the lovely Camilla who introduced herself to us and I briefly mentioned that Tegu loved the outdoors and will be outside as he was not aware of the new surroundings. A while later we had a plate of toast and crisps (Mccoy Cheese and Onion to be exact) brought out to us, with these I was thankful as these were Tegu’s favourite. We finally gained the courage to go indoors . We met William who was very receptive of Tegu, there was a definite coolness about William (the calmest dog ever) that drew Tegumailagi’s attention undisturbed. The three very thoughtful little girls (Marli,Maddi,Channelle) that helped my Tegu around the compound looking for Easter Eggs. With all these happening around me it has brought me close to tears, this was it “The pinnacle of Autism Awareness”, consideration, kindness, thoughtfulness and love they all were a definite reminder that ” it’s ok to be different”. To my Tegu being included was acceptance that voided all his self-doubt. We ended the Egg hunt with a bag filled with goodies, and an infectious smile that I could not assimilate. More importantly we left beaming with limitless confidence. Thank you to the very considerate Welfare team and Camilla for the well thoughtout Easter Egg Hunt😘😘
Spent a good few weeks at home on the Sunday of the final week I was to make my way back to the airport to fly out. This was cancelled as we took my Daddy for a checkup which resulted in admission at the hospital. Days later Daddy was also called to rest. As I Sat outside our home I question myself why is this happening to me, I could actually hear my self saying ” oh please I can’t cope ” I could not take another loss. Life was unfair it took the two most important people who were dear to my heart. It is true that you find yourself at the lowest point of your life. Came back to Northern Ireland after Daddy’s funeral. Every morning i would be met by the most beautiful scenery which was covered by droplets of morning dew. It would be quite beautiful, yet innocently peaceful. An avid Sunday school goer, I hoped like I’ve never hope before and prayed like I’ve never prayed before for the pain I had lingering to disappear. There I was like the morning dew, transparent and waiting for that warmth of reassurance from our creator to form droplets of hope to refresh my mindset. Months later that came in the form of Tegumailagi (Fijian for Heaven’s Dew). Tegu was definitely hope and reassurance personified.
They followed the duty vehicle to the airport to farewell me. Tegu was confused that I was not in the same car as them. This upset him and he was clinging on to me as if to say ” don’t go Nau”. We said our goodbyes as I walked in to the check-in counter I could not help but look back to see my Tegu. Was he looking back to see me? All I could see was his little head turning my way with that look of reassurance to let me know ” I will be alright Nau” . This time around stood in my combats, I had my mummy head on with tears streaming down my cheeks which I could not help. I reminded myself he is in the capable hands of his Ta. Wiped my tears and continued with my check-in. My family know how easily I get the waterworks going. Weeks after being in Canada, Tegu and his Ta into their routine in the UK I received a message to give them a call. Excited about seeing them on video, i went to get good internet access for a FaceTime. Nothing prepared my heart for the news that I was about to receive. Seci my husband mentioned ” well we received letter through the post from the Paediatrician…… long pause ( I knew what was coming) as if there was interference on the internet. These was two broken hearted parents who are hundreds of miles apart trying to make sense of the situation at hand. We reassured each other yes we can do this. Tegu will be alright. All I wanted was to have a family hug (hubby, Tegu and I) and reassure my Tegumailagi that it will be fine. Gods timing is best, indeed it is, as I walked back to my accommodation, it felt like the longest walk I’ve ever done. I thought to myself maybe if I was at home I would be too emotionally drained to absorb this news, and would be in denial. We both knew in our hearts what was coming, acceptance as hard as I wanted to my heart as a mum was not accepting it, my head was saying pull yourself together Lini. Testing times in itself would be our reason to stay positive and be the voice of Tegumailagi. It was also my reason to draw closer to God, and be thankful for Tegumailagi. Where do we go from here, as time is our healer and Jesus is our witness we continue to readjust, adapt, overcome and stay faithful and most of all positive.
Tegumailagi wakes up then heads straight for a shower, yes without any hesitation and even on a weekend. When in the shower he will call out “Ta” this is an indication that Ta can open the bathroom doors and help him out of the shower, dare I interfere with this regime I will be ushered back to the bathroom door by Tegu, might I add that it’s the same shower gel all the time, Jesus knows we dread to think the day the shower gel manufacturer changes the shower Gel packaging. Brushing our pearly white teeth which any parent of a Spectrum child would agree with me. It’s an a
We started this Autism journey with so much emotion and thoughts of “what if” and ” we could have” . But now on the homerun. Our infectious optimism is winning. If it was meant to be it will be. What ever the situation stay positive and keep believing. Thank you my darling Tegumailagi. Your actions does speak louder than words😘